Disability and Caregivers

Posted On April 1, 2019
Categories Uncategorized

In the United States today, there are more than 39.8 million caregivers providing care to loved ones aged 18+ with a disability or illness (U.S. Census, 2017). Loved ones in need of care including but not limited to those with autism spectrum disorder, learning disabilities, health impairments, brain Injuries, psychological disorders and attention deficit hyperactivity disorder. In most cases, the primary caregiver is a spouse, partner, parent or adult child. Caregivers often take on the responsibilities of the patient while still providing for themselves and other family members.

According to the American National Family Caregivers Association, more than one quarter (26.6%) of the adult population has provided care for a person, family member or friend with a chronic illness, old age or disability during the past year. Based on current census data, that translates into more than 50 million people.

On average, caregivers spend numerous hours daily providing aid with daily living activities. They are needed for personal care, emotional support, medical care, household management, supervision and transportation. As a caregiver it is essential to stay safe, healthy and positive. Information, support, advocacy, empowerment, care and balance can be the foundation for a healthy family and are appropriate no matter the challenge. According to the Patient Empowerment Network (PEN) (2018), sometimes people with disabilities are not completely honest with their immediate needs and tend not to seek out additional help when needed. Caretakers play an essential role in satisfying the needs of their loved ones when keeping open and honest communication.

At Georgia State University, Disability Services provides services for students, faculty and staff with permanent and temporary disabilities. Our office will work with any student with a disability (physical, health, learning, psychological, etc.) to ensure meaningful access to the goods and services offered by Georgia State University. To achieve this goal academic accommodations are often made on behalf of the student. We offer academic testing accommodations, priority registration, sign language interpreters, volunteer note- takers, assistive/ adaptive technology, academic coaching, events and workshops on financial literacy and career opportunities.

References

National Family Caregivers Association (NFCA). (n.d.). Retrieved from
https://nevadaadrc.com/services-and-programs/medicare/state-health-insurance-assistance-program-ship/itemlist/category/442-national-family-caregivers-association-nfca
National Family Caregivers Association (NFCA). (n.d.). Retrieved from
https://nevadaadrc.com/services-and-programs/medicare/state-health-insurance-assistance-program-ship/itemlist/category/442-national-family-caregivers-association-nfca
US Census Bureau. (n.d.). Census.gov. Retrieved from https://www.census.gov/